Hey everyone!
After spending a
week in London studying the 19th century anti-vaccination movement, I found
many connections to current movements. This post is an overview of some of those similarities.
The London School for Hygiene and Tropical Medicine- the Vaccine Confidence Project can be found here. Also notice the names at top- Sir John Simon was in charge of the 1858 Vaccination Act! |
A major reason I was interested in the topic is because of the current implications. The World Health Organization listed "Vaccine Hesitancy" as one of the top ten threats to global health in 2019 (that means it ranks up with Ebola and microbial resistance). The persistent mistrust of vaccines is very interesting to me, especially looking at how that hesitancy differs between time, cultures, and vaccines. I was really lucky to be speak to Clarissa Simas, who works at the Vaccine Confidence Project. With degrees in medical anthropology and psychology, she has done extensive research on HPV vaccine hesitancy in particular. We were able to talk for about an hour, and she emailed me a list of sources on the biotechnical embrace, medical populism, and current methods on theorizing vaccine refusal. Her reflections on the current state of vaccine hesitancy helped me to understand current concerns, communication strategies, and ways we can learn from the weakness of the 19th century vaccination laws. Understanding the historical legacy of this problem can provide insights into countering it today.
Concerns
While there was only
vaccination for smallpox in the 19th century, now there are 18 approved
vaccinations. Between vaccine types, concerns differ. Concerns can also differ
between cultures, so it is important to understand the specific context when
addressing the fears. Understanding a target population's precise concern can
help to approach the conversation about the vaccine in a more thoughtful and
effective way.
In current research,
vaccine hesitancy is classified into four main categories: safety,
effectiveness, religious, and moral concerns. In the 19th century, smallpox
vaccination concerns fell into these categories as well.
Safety Concerns:
This is the building for the National Autistic Society They state on their website "The National Autistic Society is clear that there is no link between autism and the MMR vaccine." |
The
journals are full of personal experiences with illness and death as a result of
vaccination. In Mary Hume-Rothery's "150 Reasons for Disobeying the
Vaccination Law by Persons Prosecuted Under It", a majority recount vaccination injuring/
killing a friend, a child, or themselves. Tragic stories of victims, such as
Miss Ellen Terry, were also recounted in the journals. It was interesting how many different medical
problems vaccines were blamed for- everything from tooth decay to lunacy to
cancer was attributed to vaccination.
There were also
large paragraphs about blood-poisoning and rotting flesh, which could be
inspired by Gothic literature at the time (such as Frankenstein and Dracula).
In fact, there was a pamphlet produced called "The Vaccination
Vampire" in which Garth Wilkinson described blood-poisoning.
Today, vaccinations
like MMR have "safety concerns" associated with it after Andrew
Wakefield's (falsified) study that the vaccine caused autism. Many of the
ailments attributed to smallpox were not well understood at the time, and
similarly the causes of autism are complex and not well understood today. The
focus on the fear of autism, as opposed to the fear of measles/ mumps/
rubella, is interesting, and perhaps
highlights that not having neuro-normative a child is akin to 19th century
fears of monsters. (This then begs the question- why? What in our culture needs to change? A way to address MMR vaccine hesitancy could be to make it
easier for parents with autistic children to find and afford services, as well as addressing stigma.)
This satirical pamphlet express a fear of government control over bodies |
Effectiveness Concerns:
Mary
Hume-Rothery and others often created large statistical tables to show that the
unvaccinated were not more likely to die from smallpox, and that the medical
statistics were wrong. As Pasteur's ideas about germ theory came out, he was often
attacked. For the Victorian understanding of the body, it didn't make sense to
put something unclean into your body to make you healthier.
Today, many people
have concerns about the effectiveness of the flu vaccine. Many people either
have personal experience ("I got the vaccine but still got the flu")
or are skeptical of researchers ability to predict the new strains.
Religious Concerns:
Religious
concerns were prevalent, as many thought it wasn't right to interfere with
God's will. May Hume-Rothery called the laws "Devil Worship" and
people who were arrested for refusing to vaccinate their children were compared
to religious martyrs. Even in the letters abut vaccination from 1803, the author
writes "Our little girl we leave in the hands of the Lord who does all
things right".
An example of these
type of concerns today can be found among Muslim populations, who need to be
assured there is no pork product in the vaccine. Another example is refusal of
the HPV vaccine because it might "encourage promiscuity" in girls. Because
of religious beliefs, people are hesitant about vaccines.
Moral Concerns:
In sophomore tutorial, we discussed modern day questions of bodily autonomy in museums- I was suprised to see "Body Worlds" while in London! (Was too scared to go in lol) |
In the 19th century,
moral concerns came from the vegetarians who disliked the use of
"cow-grease" and others concerned with vaccination not being
"natural". Throughout the journals, there were many "healthy
habit tips", encouraging exercise, fresh air, a healthy diet, and not
smoking or drinking. In this way, the 19th century anti-vaccinators did care
quite a bit about their health and were just very careful about what they put
into their bodies.
When someone's
identity is founded on them being a "naturalist", it can be difficult
to convince them to vaccinate. Today, there are also concerns about vaccination
not being natural. For example, there are fears of mercury in vaccines poisoning
children.
Another intersection
of 19th century and modern moral
concerns centers around body autonomy. The Contagious Diseases Act of 1864
allowed for the arrest, detention, and invasive examination of any woman that
"looked like a prostitute" in order to protect the male soldiers from
STIs. (Note- Winston Churchill's mother discreetly fought against this act.)
The doctor did not receive the woman's consent. The 1832 Anatomy Act gave poor
law guardians power to distribute corpses of dead paupers to anatomical schools
for dissection. In this way, even after death, the bodily rights of the poor
were not respected. These laws sought to control the bodily autonomy of women
and the poor, and the Vaccination Acts were seen to be similar flexes of
biopower over vulnerable groups. Today, "my body, my choice" is a
common rallying cry for abortion rights, but also as an argument against
vaccination. Bodily autonomy continues to be a moral objection, especially for
disadvantaged groups.
Communication Strategies
In both 19th century
and modern contexts, there are similarities between the methods of spreading
information as well as what type of information was being spread. Additionally,
the marketing methods of vaccinators experienced problems in both time periods
as well.
Spread of Information
This page from the National Anti-Compulsory-Vaccination Reporter shows the subscriptions received, when meetings are, and available literature to purchase. |
In many of the 19th
century anti-vaccination journals, they spoke of a frustration with
"mainstream media" newspapers for not supporting their cause or
"showing both sides". (Note- today this focus with
"balance" in the media allows for climate change deniers to have an
equal platform) To address the lack of support from mainstream media, they
created their own journals, circulated their own pamphlets, and held their own
conferences. At the end of each issue of the National Anti-Compulsory-Vaccination
Reporter, there was a list of "subscribers" who for small fees, could
order extra copies to show others. One woman spoke about leaving extra copies
in hotels when she traveled. Others spoke about sending the pamphlets to all
new mothers and fathers, and many were generated with that target audience in
mind. Additionally, there was a great deal of international correspondence,
including exchanges with people India, the United States, South Africa,
Germany, etc. When the traditional infrastructure refused them, they created
their own.
Similarly,
anti-vaccination groups of today increasingly utilize their own
infrastructures. After the WHO declared vaccine hesitancy a top threat, many
social media sites were pressured to censor the spread of misinformation about
vaccines, as lives were at stake. While Twitter has done nothing and Facebook
are still discussing, Pinterest took steps to remove anti-vaccination activity
by limiting searches. (I find it interesting that Pinterest- with predominantly
female users- was the first to act.) As these established platforms begin to
censor, Clarissa told me that anti-vaccination groups are moving to their own
websites. From "arnica.org.uk" to "jabs.org.uk", these
websites are in some ways, the modern "National Anti-Compulsory-Vaccination
Reporter". Open networks, like "mumsnet.com" are also popular
open forums, similar in some ways to the conferences held by the 19th century
leagues. The sites, public on the internet, has allowed for even greater
international correspondence. Once again, anti-vaccinators created their own
methods of sharing information.
This is a scene from "The Worshipers of Whitehall"- I really enjoy the "...and then everyone clapped" |
Stories
In many of my
sources, I found more than just attempted scientific justification. Some of the
most entertaining sources I looked at were the anti-vaccination poems, songs,
chants, and plays. For example, Worshipers of Whitehall was a six act satirical
play that portrayed vaccinators as bumbling, sheep-like "wise-men"
who ignored all evidence. Anti-vaccinators, called "Ignorant
Fanatics", gave eloquent speeches "and everyone clapped" (direct
quote). There were also numerous short stories involving a baby being
vaccinated and then the family unit suffering. Speaking to Clarissa, she said
there were many similar dramas about the HPV vaccine on YouTube, with crazy
plot lines emphasizing horrible side effects and "degenerating
morals". These stories are impactful, and difficult for those seeking to
restore vaccination confidence to counter. Much like the TSA, no one pays
attention to the hard work vaccines do unless something goes wrong. Prevention
should be a boring story. However, it is important that in countering
anti-vaccination materials, there isn't a sole reliance on logic, and instead
there are emotional arguments present as well.
Branding
The British Library!!!! |
The association of
the Vaccination Acts with the Contagious Diseases Act contributed to the
anti-vaccination movement's alliance with the feminist movement. Passed around
the same time, many thought they were directly related. Many considered both of
these acts to just be methods of controlling women's bodies. Especially in
obstetrics, many women experience a lingering mistrust of medical institutions
which then influence their readiness to accept vaccination for their children.
Additionally, the association of the poor law guardians with both the Anatomy
Act of 1832 and the Vaccination Acts contributed to the branding of both acts
as an attack on the poor. The Vaccination Laws were originally run by the Poor
Law authorities, and after they saw the disrespect given to the corpses of the
poor, they did not trust their motives. Women and disadvantaged groups resist
vaccination because of it's marketed associations with these oppressive
institutions.
The HPV vaccine
similarly influenced biotechical embrace through branding. When the HPV vaccine
was first announced, it was marketed to only girls as prevention of an STD.
With this branding, some religious cultures refused to let their daughters be
vaccinated, as they thought it would be like a "free pass" and make
them more promiscuous. Now, the vaccine is being marketed to both boys and
girls, and is described to prevent genital warts. Public health officials hope
these changes will help increase uptake.
Both of these
examples demonstrate the importance of understanding the culture's concerns
when preparing communities to receive vaccines. Aligning vaccination with
institutions must be done carefully. "Vaccine preparedness" is more
than just making sure the science is correct, it's also about appropriate
health communication.
Weaknesses of 19th Century Vaccinators
At the Old Operating Theatre Museum, there was a book in which visitors could write their medical fears. "Antivaxers" was one of them! |
The strength of the
19th century anti-vaccination movement highlights the weakness of the public
health system's approach. Vaccination was forced without a true understanding
of why they worked, as germ theory wasn't developed until the late 1800s. Parents
weren't allowed to ask questions about the procedures being performed on their
infants, because the vaccinators themselves didn't understand. Explaining the
science is important for gaining trust. Additionally, the harsh penalties of
huge fines or imprisonment became a rallying cry. The journals published weekly
lists of the "brave martyrs" who were prosecuted for "just
trying to be concerned parents". In part two of Henry Pitman's
"Prison Thoughts on Vaccination", he wrote "Part 1 brought me
hundreds of sympathetic letters, and two abusive post-cards". (He then
proceeds to show how dumb the two "abusive post-cards were.) The harsh
penalties were a used by the anti-vaccinators to prove their points. Additionally,
the journals are full of examples of vaccinators, judges, and others in
positions of power treating women like they were dumb. Many of the women,
believing that their role as mother included guardians of their children's
health, were upset at the disrespect shown to them. Those opposing them served
as threats to their control over the house. A very good example of this can be
found in the published letters between a female anti-vaccinator and her male
cousin. After sending him a copy of an issue of the
"Anti-Vaccinator", he replied that she shouldn't be involved in the
movement, as "It would be far better, and more in accordance with feminine
modesty, if ladies would attend to their own domestic duties and leave medical
questions alone, rather than bring a share of ridicule and disgrace upon their
sex." She replied "…you seem to think it is impossible that a woman
can know anything and be able to cook at the same time. You are wrong, let me
assure you. I ca be as domesticated as you please, and still it does not
prevent me from writing on any subject I like…", affirming that she
believes her role as a woman is to be involved in the anti-vaccination
movement. By calling her dumb and insulting women, the argument was no longer
about the science but rather her defending herself and her gender.
Such an amazing experience!!!! |
Understanding these
flaws in the 19th century vaccination enforcement provides great insight for
today. Even when we disagree strongly with the dangerous actions of
anti-vaccinators, attempts to condescend, vilify, or demean them do not help
fix the situation. The Vaccine Confidence Project is working on publishing
cultural specific guides to help public health departments address specific
communities concerns in a more thoughtful way.
Conclusion
Working on this research has been an
incredible experience. I've learned so much, not just about the 19th century
anti-vaccination movement, but also gained a better perspective on how to do
this kind of research, as well as make it meaningful for work today.
Understanding the historical legacy of issues in our world today is so
important. I'm very excited to continue exploring this field and I'm so grateful for this opportunity to travel! Thank you so much to everyone
who helped make it possible!
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